The Assistance Fund Opens New Program for Neurofibromatosis

ORLANDO, Fla., January 8, 2024 (Newswire.com) - The Assistance Fund, an independent charitable patient assistance organization that helps patients and families facing high medical out-of-pocket costs, today announced the launch of a new financial assistance program for people living with neurofibromatosis (NF). The program is designed to help eligible individuals pay for their out-of-pocket medical costs for treatment, such as copayments, health insurance premiums, and incidental medical expenses related to the condition.

Neurofibromatosis is a genetic condition related to chromosomes 17 and 22 where tumors develop on the nervous system, often during childhood.[1] People living with NF experience uncontrolled cell growth with signs appearing as freckles in the armpits and groin, “café au lait” spots on the skin, and optic glioma. Without treatment, children with NF can experience growth and developmental delays.

“Learning that your child has a rare disease like neurofibromatosis can be devastating,” said Danielle Vizcaino, President and CEO of The Assistance Fund. “The Assistance Fund’s new Neurofibromatosis Financial Assistance Program will eliminate critical barriers to treatment for families facing a neurofibromatosis diagnosis, allowing them to focus on managing the condition.”

To learn more or determine eligibility for financial support, visit tafcares.org or call (833) 603-3696 to speak with a Patient Advocate.

A list of all the disease programs available from The Assistance Fund can be found on the website tafcares.org.

About The Assistance Fund

The Assistance Fund (TAF) is an independent charitable patient assistance organization that helps patients and families facing high medical out-of-pocket costs by providing financial assistance for their copayments, coinsurance, deductibles, and other health-related expenses. The Assistance Fund currently manages 90 disease programs, each of which covers all the FDA-approved medications that treat a specific disease named in the disease program. Since its founding in 2009, TAF has helped nearly 180,000 children and adults access the treatment they need to stay healthy or manage a life-threatening, chronic, or rare disease. To learn more about The Assistance Fund, or for information on how to donate, please visit tafcares.org. 

Media Contact

Margaret Figley

Senior Director of Communications

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[1] Mayo Clinic, “Neurofibromatosis,” https://www.mayoclinic.org/diseases-conditions/neurofibromatosis/symptoms-causes/syc-20350490, accessed December 2023. 

Source: The Assistance Fund