Yvie Oddly Wins the Hearts of the EDS Community

Patient Advocate and International Executive Director Lara Bloom to screen inspiring documentary, "Issues with my Tissues," to empower patients, families, and raise awareness for EDS and associated disorders

With generous support for research funding, The Ehlers-Danlos Society sponsors International Symposium in Ghent, Belgium, to accelerate collaborative global research into EDS, HSD, their related symptoms and associated conditions.

Anonymous donor presents $1 million gift to The Ehlers-Danlos Society to jumpstart groundbreaking genomic research into genetic cause of hypermobile Ehlers-Danlos syndrome (hEDS), a rare, degenerative, and all-too-often painful, disabling connective tissue disorder