ehlers-danlos-syndrome | Media Room

Press Release May 18, 2020

Lara Bloom, President and CEO of the Ehlers-Danlos Society, Appointed to a Professorship at Penn State College of Medicine - Pennsylvania, United States

Press Release Oct 7, 2019

The Ehlers-Danlos Society Center Opens at Indiana University Health

Press Release Aug 16, 2019

The Bobby Jones Chiari & Syringomyelia Foundation and The Ehlers-Danlos Society to Host 'Diagnosis and Management of Syndromes of the Craniocervical Junction and Roundtable Discussion' at The Royal Society of Medicine, London, UK

Press Release Aug 1, 2019

Jameela Jamil Presented With The Ehlers-Danlos Society Patient Advocate Award

The Ehlers-Danlos Society Nashville Award Ceremony

Press Release May 31, 2019

The Ehlers-Danlos Society Congratulates Yvie Oddly on Winning Drag Race

Yvie Oddly Wins the Hearts of the EDS Community

Press Release May 24, 2019

The Ehlers-Danlos Society Awarded $50,000 Donation From Carnival Cruise Line Aboard the Launch of the New Carnival Sunrise

Press Release Mar 8, 2019

The Ehlers-Danlos Society Announces Worldwide Research Study to Identify the Genetic Cause of Hypermobile Ehlers-Danlos Syndrome

Press Release Aug 4, 2011

Hollywood Reporter Shannon Rose Discusses His Rare Medical Condition

Hollywood Reporter Shannon Rose talks to HealthyState.org about his rare medical condition Ehlers-Danlos Syndrome and how he's battled the disease's afflictions to become the success he is today.