ehlers-danlos-syndromes | Media Room

Press Release Sep 29, 2020

The Ehlers-Danlos Society Hosts Its First EDS ECHO Summit: A Virtual Scientific Meeting on EDS, HSD, and Comorbidities

Press Release Oct 7, 2019

The Ehlers-Danlos Society Center Opens at Indiana University Health

Press Release Aug 1, 2019

Jameela Jamil Presented With The Ehlers-Danlos Society Patient Advocate Award

The Ehlers-Danlos Society Nashville Award Ceremony

Press Release Jul 31, 2019

The Ehlers-Danlos Society Launches Its 2019 Global Learning Conference in Nashville, Tennessee

Press Release May 31, 2019

The Ehlers-Danlos Society Congratulates Yvie Oddly on Winning Drag Race

Yvie Oddly Wins the Hearts of the EDS Community

Press Release Mar 8, 2019

The Ehlers-Danlos Society Announces Worldwide Research Study to Identify the Genetic Cause of Hypermobile Ehlers-Danlos Syndrome

Press Release Oct 9, 2018

Becoming ZebraStrong: Ehlers-Danlos Society Launches International Patient Empowerment and EDS Awareness Tour

Patient Advocate and International Executive Director Lara Bloom to screen inspiring documentary, "Issues with my Tissues," to empower patients, families, and raise awareness for EDS and associated disorders

Press Release Sep 28, 2018

International Symposium Convenes to Address Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders

With generous support for research funding, The Ehlers-Danlos Society sponsors International Symposium in Ghent, Belgium, to accelerate collaborative global research into EDS, HSD, their related symptoms and associated conditions.

Press Release May 23, 2018

Born This Way? When Hypermobility Has Its Privileges - and Problems

The Ehlers-Danlos Society Seeks to Build Awareness Among Dancers, Gymnasts, and Acrobats

Press Release May 2, 2018

FRAGILE, but UNBREAKABLE: May is Ehlers-Danlos Awareness Month

Press Release Mar 12, 2018

Ehlers-Danlos Society Taps Medtech Maverick and Fintech Innovator to Join Board of Directors