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The Bobby Jones Chiari & Syringomyelia Foundation and The Ehlers-Danlos Society to Host 'Diagnosis and Management of Syndromes of the Craniocervical Junction and Roundtable Discussion' at The Royal Society of Medicine, London, UK

Press Release Aug 16, 2019

The Bobby Jones Chiari & Syringomyelia Foundation and The Ehlers-Danlos Society to Host 'Diagnosis and Management of Syndromes of the Craniocervical Junction and Roundtable Discussion' at The Royal Society of Medicine, London, UK

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Born This Way? When Hypermobility Has Its Privileges - and Problems

Press Release May 23, 2018

Born This Way? When Hypermobility Has Its Privileges - and Problems

The Ehlers-Danlos Society Seeks to Build Awareness Among Dancers, Gymnasts, and Acrobats Read More

Ehlers-Danlos Society Receives Transformational Gift for Genomic Research Into Rare Disorder, HyperMobile EDS

Press Release Feb 13, 2018

Ehlers-Danlos Society Receives Transformational Gift for Genomic Research Into Rare Disorder, HyperMobile EDS

Anonymous donor presents $1 million gift to The Ehlers-Danlos Society to jumpstart groundbreaking genomic research into genetic cause of hypermobile Ehlers-Danlos syndrome (hEDS), a rare, degenerative, and all-too-often painful, disabling connective tissue disorder Read More

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