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muscular
Press Release
Feb 24, 2011
Hundreds Of Children And Adults Will Come Together At The South Country Regional Park In Boca Raton For Jacob's Run, Walk & Roll To Cure SMA
Boynton Beach residents Shaina and Adi Rappoport have served as the event organizers since 2002 when their son, Jacob, passed way from SMA (Spinal Muscular Atrophy) related complications. Jacob was nine months old.
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Press Release
Dec 29, 2010
Families of Spinal Muscular Atrophy Evaluating Six New Drug Discovery Programs for New Funding in 2011
In response to our October Request for Proposals (RFP) for new drug programs to develop therapies for Spinal Muscular Atrophy we received nine Letters of Intent for potential programs.
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