Initiates Galactosemia Research Collaboration with Emory University School of Medicine

FPWR Board of Directors Hires John Walter to Lead Organization

The conference, which will occur on Oct. 13-14, 2017 in Nashville, Tennessee, is the largest support gathering for those affected by Multiple System Atrophy, a rare and terminal neurodegenerative disorder.

The MSA Coalition, the leading nonprofit funder of global MSA research and the nation's foremost charity totally dedicated to serving patients, caregivers and families affected by Multiple System Atrophy, announces the election of Steve Klisares, an experienced MSA caregiver and business professional, to its Board of Directors.

"Diagnosis: Rare Disease" is author and mother Denise Crompton's compelling look at 13 families who received the diagnosis no parents ever wants to hear. Her book is "destined to become a classic" in the world of rare or orphan hereditary disorders.

The Multiple System Atrophy Coalition was founded in 1989 as a Support Group offering a toll-free hotline and an annual patient/caregiver conference. The new name was chosen to better reflect the Coalition's focus on advocacy, education and research

Barbara Wuebbels, R.N., M.S., Oved Amitay, and Rod Monroy, Ph.D. set to speak at the Premier marcus evans Life Cycle of Orphan Drug Development & Commercialization Conference

The Anderson Cooper Daytime Talk Show will feature a segment titled "The Boy Who Cannot Eat", addressing eosinophilic disorders on Friday, March 23, 2012.

Synowledge is a global provider of drug safety, regulatory affairs and related IT solutions to small, mid and large sized pharmaceutical and biotechnology companies. Our comprehensive outsourcing solutions combine the unique strengths of both onshore

APFED, a patient advocacy organization representing eosinophilic disorders, to join NORD in observing Rare Disease Day 2012

• Alkaptonuria is a rare genetic metabolic disorder with global incidence of 1 in 2,50,000
• Unique surgical challenges overcome with expert team and innovative implant
• Patient starts walking on second day post-surgery

CryerHealth, LLC, a boutique healthcare consulting firm committed to creating patient-centric solutions to health and healthcare delivery challenges, announced its sponsorship of the 5th Annual Rare Disease Leadership Summit.

Today is the last day to vote for Jacob's Cure in the Chase Community Giving. Please support this amazing cause working to find a treatment, and ultimately a cure, for Canavan disease. Vote today http://apps.facebook.com/chasecommunitygiving/charitie

Jacob's Cure participates in Chase Community Giving Project. Visit http://apps.facebook.com/chasecommunitygiving/, and vote for Jacob's Cure as the charity you support.

June 2010 marks the tenth annual "MG Awareness Month," a nationwide movement created by the Myasthenia Gravis Foundation of America, Inc. (MGFA) to raise awareness of the often misunderstood and under-diagnosed disease, Myasthenia Gravis (MG).