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rare-diseases
Press Release
Jul 25, 2024
The Assistance Fund Named Finalist for Charity Navigator Community Choice Awards
National Award Recognizes Commitment to Positive Impact and Transparency
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Press Release
Jul 1, 2024
The Assistance Fund Adds Three New Members to Board of Directors
Linda Howard, Daniel Klein, and John Rushing Join The Assistance Fund’s Board of Directors
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Press Release
Mar 25, 2024
CMTA Board Evolution: Welcoming Bernard Coulie and Kevin Marks
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Press Release
Jun 28, 2023
The Oligonucleotide Therapeutics Society is Pleased to Announce the 2023 Annual Meeting in Barcelona, Spain
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Press Release
Sep 4, 2022
The Oligonucleotide Therapeutics Society's Highly Anticipated Annual Meeting Returns in Person This Year
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Press Release
Oct 9, 2021
The Oligonucleotide Therapeutics Society Celebrates Another Remarkable Annual Meeting
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Press Release
Sep 24, 2021
New Documentary Focused on Rare Diseases Launches Crowdfunding Campaign
"Rare" is a film exploring the world of rare diseases and the unsung heroes pushing for medical breakthroughs.
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Press Release
Jan 26, 2021
PatientsLikeMe Partners With Takeda to Empower Patients and Elevate Patient Voice to the Level of Evidence
Across Rare Diseases, Neuroscience/Mental Health, Immunology and Gastroenterology
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Press Release
Dec 30, 2020
First Baby With GAMT Deficiency Identified Through Newborn Screening
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Press Release
Oct 20, 2020
Association for Creatine Deficiencies (ACD) Awards Dr. Gerald Lipshutz, Ph.D., With Its Gene Therapy Advancement Award (GTA)
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Press Release
Feb 18, 2020
DNX Biopharmaceuticals Announces Collaboration With Lung Cancer Initiative at Johnson & Johnson
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Press Release
Oct 23, 2019
As Gene Therapy Trial Commences, National Tay-Sachs & Allied Diseases Association Announces New Board Members
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Press Release
Feb 25, 2019
Dante Labs Unveils 1,000 Patient Epilepsy Whole Genome Study to Advance Research and Therapies for Patients With Epilepsy
1,000 patients will receive free whole genome sequencing and interpretation, including personalized reports, thanks to Epilepsy Awareness Day at Disneyland, in a push to advance new research and gene therapies
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Press Release
Dec 20, 2018
Morphogen-IX Raises £18.4M ($23.2M) in a Series B Financing
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Press Release
Oct 3, 2018
International Association of Women Recognizes Nancy Alexander as a 2018-2019 Influencer
Nancy Alexander, Account Director, Southeast at Sanofi Genzyme, joins networking organization
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Press Release
Apr 19, 2018
Easing the Rare Disease Patient's Burden in Clinical Trials With Innovative Technology, New Webinar Hosted by Xtalks
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Press Release
May 2, 2017
How One Local Business Chose to Make Immediate Impact in Finding Cures for Rare Diseases
Alongside You at Rare Finds YVR event
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Press Release
Dec 3, 2015
SOM Biotech Is Launching an Indiegogo Crowdfunding Campaign for Pediatric Rare Diseases
SOM Biotech has launched a crowdfunding campaign to raise funds for five new early-stage R&D projects in pediatric rare diseases. These diseases are Cystic Fibrosis, Duchenne Muscular Dystrophy, Gaucher Disease, Niemann Pick Disease Type C, and Osteogenesis Imperfecta (Brittle Bones Disease). This ambitious move comes in light of growing optimism of its current clinical programs. SOM Biotech seeks to raise at least 300,000 USD$ in donations within a 2-month period.
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Press Release
Mar 9, 2011
FDA Highlights Jackson Gabriel Silver Foundation As Part Of The Fourth Annual Rare Disease Day
As part of its global campaign to raise awareness for rare diseases and the Americans afflicted by them, the FDA has highlighted Epidermolysis Bullosa (EB) and the Jackson Gabriel Silver Foundation. JGSF founder Alexander Silver said "We're honor
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