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rare-disorders
Press Release
Feb 13, 2018
Ehlers-Danlos Society Receives Transformational Gift for Genomic Research Into Rare Disorder, HyperMobile EDS
Anonymous donor presents $1 million gift to The Ehlers-Danlos Society to jumpstart groundbreaking genomic research into genetic cause of hypermobile Ehlers-Danlos syndrome (hEDS), a rare, degenerative, and all-too-often painful, disabling connective tissue disorder
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Press Release
May 2, 2017
How One Local Business Chose to Make Immediate Impact in Finding Cures for Rare Diseases
Alongside You at Rare Finds YVR event
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Press Release
Jun 13, 2016
June 12 - 18 2016 Is Rare Chromosome Disorder Awareness Week
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