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Press Release
Aug 1, 2022
The Fighting for Kaiden Foundation and rareLife Solutions Announce New Partnership in Support of oneSMAvoice.com
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Press Release
Mar 18, 2013
Families of SMA and Nationwide Children's Hospital Announce Multi-Million Dollar Award from NINDS
Nationwide Children's Hospital and Families of Spinal Muscular Atrophy announce the award of a multi-million dollar cooperative agreement from the NINDS to advance a gene therapy development program for Spinal Muscular Atrophy.
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Press Release
Sep 27, 2012
Repligen Initiates Phase 1b Trial of RG3039 for Spinal Muscular Atrophy Licensed from Families of SMA
The primary objectives of the study are to further evaluate the safety and plasma pharmacokinetics (PK) of multiple doses of RG3039 in healthy volunteers.
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Press Release
Jun 9, 2012
Families of SMA Announces $1.4 Million Planned for Next Round of Spinal Muscular Atrophy Research Funding
Families of Spinal Muscular Atrophy (FSMA) is dedicated to creating a treatment and cure for Spinal Muscular Atrophy (SMA) by funding and advancing a comprehensive research program
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Press Release
May 3, 2012
Families of SMA Awards New Funding to Advance a CNS Delivered Gene Therapy for Spinal Muscular Atrophy
Families of SMA is pleased to announce the award of up to $750,000 for an important new grant to Dr. Brian Kaspar at Nationwide Children's Hospital.
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Press Release
Apr 25, 2012
Repligen Reports Positive Results From Phase 1 Clinical Trial for Spinal Muscular Atrophy (SMA).
Repligen Corporation (NASDAQ:RGEN) today announced positive results from a Phase 1 study to evaluate the pharmacokinetic (PK) and safety profile of RG3039, a novel small molecule drug candidate for the potential treatment of SMA.
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Press Release
Mar 22, 2012
Jacob Isaac Rappoport Foundation Aims for Million Dollar Milestone Supporting SMA Research
With the 9th Annual Jacob's Run, Walk & Roll Event to be held on April 1st, The Jacob Isaac Rappoport Foundation is aiming to reach the milestone of raising $1,000,000 for Spinal Muscular Atrophy (SMA) Research
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Press Release
Jan 12, 2012
New York Trade Show Display Firm Helps Support Fundraising Efforts for Rare Disease
Leading New York based trade show exhibit design firm, Skyline Genesis Event Marketing, takes initiative in raising awareness and funds for Spinal Muscular Atrophy (SMA)
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Press Release
Jan 10, 2012
Families of Spinal Muscular Atrophy Releases SMA Care Series Booklet on Nutrition Basics for SMA.
"Nutrition Basics: Fostering Health and Growth for Spinal Muscular Atrophy" is Families of SMA's newest release of the SMA Care Series Booklets.
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Press Release
Oct 18, 2011
Families of Spinal Muscular Atrophy Awards 7 New Basic Research Grants for $745,000.
Awards will help develop new approaches for SMA therapies. These new awards encompass $745,000 for the basic research portion of the $3 Million in new research funding that FSMA announced earlier this year.
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Press Release
Jul 20, 2011
Families of Spinal Muscular Atrophy Awards $3 Million in New SMA Research Funding
The new funding awards will be allocated into three distinct research areas: 1)Basic Research to understand the disease, 2)Drug Discovery to develop new SMA therapies, and 3)Clinical Research to provide the means to test new drugs effectively.
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Press Release
May 19, 2011
Families of Spinal Muscular Atrophy Announces Repligen Corporation Receives FDA Approval to Begin Phase I Clinical Trial in SMA
First ever clinical trial approved for SMA with a novel drug specifically designed to treat the disease.
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Press Release
Dec 16, 2010
MDA Invests $1.4 Million to Help Advance the Families of SMA Quinazoline Drug Program for Spinal Muscular Atrophy at Repligen Corporation.
The MDA has committed to invest funds in the FSMA Quinazoline Program at Repligen Corporation to assist in advancing the program to an IND filing with the FDA.
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Press Release
Nov 11, 2010
Families of Spinal Muscular Atrophy Launches Next Phase of Drug Development Efforts for SMA
Families of SMA announces Request for Proposals (RFP) for new drug programs to develop therapies for Spinal Muscular Atrophy. FSMA is aiming to fund two new preclinical drug development programs in 2011, with more to follow.
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Press Release
Sep 27, 2010
Planet Gift Baskets Partners Lemon-Aide For Life For A Cure For Spinal Muscular Atrophy
Planet Gift Baskets supports the annual fund raiser for Spinal Muscular Atrophy and family support.
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Press Release
Aug 26, 2010
Volunteers Across the Country Will Hold 50 Fundraising Events in the Next Two Months for Families of Spinal Muscular Atrophy
All across the United States volunteers will come together to raise funds for critical SMA research and patient support programs. These events range from the FSMA signature Walk-n-Roll, to golf outings and fun comedy nights.
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